Developmental Disability

This program seeks to assist GPs working with people who have developmental disabilities. Over 2% of Australians have a developmental disability (which includes intellectual disability, cerebral palsy and autism disorders) and General Practitioners are the usual providers of healthcare to this population.

Downloads

• Fact Sheets  for Consent at the Guardianship and Administration Board 

• Health Assessment for people with Intellectual Disability MBS Details   DOHA Fact Sheet and Resources 

• Patients with intellectual disabilities Consent Flowchart and notes

• The Intellectual & Developmental Disability in Adults - Desktop Checklist for GPs  

• A range of resources is available at the Centre for Developmental Disability Health Victoria at Monash University.

• Intellectual Disability Health Assessment (718,719), MD   Best Practice  Medtech32  

• High-functioning Autism Spectrum Screening Questionnaire (ASSQ)

• Screening Tests for Adults with Intellectual disabilities at the JABFM  

• Guidelines for treating patients with an intellectual disability.^{Dec 08}

Other (Contact Division for a copy)

Text: Management Guidelines: Developmental Disability. Lennox, N. & McDowell, J. (ed) (2005) Melbourne: Therapeutic Guidelines Ltd.

CDROM: Healthcare Scenarios in Developmental Disability Medicine. Tracy,J. & Burbudge, M. (2005) . Melbourne: Centre for Developmental Disability Health Victoria.

Other Resources

• Developmental Disabilities Resources for Health Care Providers A website on developmental disability specifically for primary care physicians.

• The Centre for Genetics Education is dedicated to providing current and relevant genetics information to individuals and family members affected by genetic conditions and the professionals who work with them.

• Online Mendelian Inheritance in Man. This database is a catalog of human genes and genetic disorders

Professional Associations

• The International Association for the Scientific Study of Intellectual Disabilities (IASSID) An international and interdisciplinary scientific nongovernmental organisation with official relations with the World Health Organization. It promotes worldwide research and exchange of information on intellectual disability. Telephone +33 1 4385 1206

• Australian Society for the Study of Intellectual Disability (ASSID) To enhance the skills, knowledge and commitment of its members and to facilitate a supportive network in order to enhance the quality of life of people with intellectual or developmental disability. Telephone 1800 644 741

• Australasian Academy of Cerebral Palsy and Developmental Medicine (AACPDM)

• Australian Association of Developmental Disability Medicine

Commonwealth/National

• Commonwealth Carelink Centres A single access point for up-to-date contact, availability and eligibility information on community aged care, disability and support services in each area. They also provide GPs, service providers or patients with information on opening hours, possible costs and entry periods for receiving services. Freecall 1800 052 222

• Commonwealth Carer Respite Centres Coordinate access to respite services in your local area. Freecall 1800 059 059

• Carers Australia For information and support, carers can call the Commonwealth Carers Resource centre in their state or territory on 1800 242 636.

• Centrelink Details of benefits and entitlements available to people with disability and their families are available from Centrelink (these include the Carer Allowance, Assistance for Isolated Children, Disability Support Pension, Mobility Allowance, Pensioner Education Supplement and Carer Payment). People with disability looking for work can receive assistance through the Centrelink disability offices.

• Centre for Developmental Disability Health, Victoria (CDDHV)

• National Council on Intellectual Disability (NCID) Represents people with intellectual disability and their families, also provides advocacy and consultative service. Telephone (02) 6296 4400

• Sexual Health and Family Planning Australia

• Cerebral Palsy Australia Specialist centres set up to support people with cerebral palsy often have special expertise in the area of communication support.

• Cerebral Palsy Helpline A confidential, telephone information and support service for anybody with questions or concerns about cerebral palsy. Provides accurate and up to date information on cerebral palsy. Is staffed by experienced and qualified personnel. Phone: 1300 30 29 20 (for the cost of a local call)

• Independent Living Centres Australia National website of the Independent Living Centres. Independent Living Centres are non-government, not-for-profit, community based equipment information and advisory resource services.

• Australian Communication Exchange A not-for-profit organisation for people with disability to obtain access to telephone and other telecommunication networks.

Tasmania

• Department of Health and Human Services Gives information about disability services available in Tasmania. Disability Services (Adult)- worth obtaining their "Resource manual of services for people with disabilities" Tel 03 62307600

• Aged and Disability Care Information Service (ADCIS) Provides information about and referral to services, advocacy and support groups. Telephone (03) 6234 7448 Freecall 1800 806 656 TTY (03) 6234 9432

• Rehabilitation services Calvary Rehabilitation Services

• Independent Living Centre  a non-government, not-for-profit, community based equipment information and advisory resource service.

• Local government provides a range of services including home help, respite, disabled person's parking permits and recreational services. For information about local government services contact health and aged services at the local council.

• Family Planning Tasmania

• Legal Guardianship and Administration Board Telephone (03) 6233 3085

• Office of the Public Guardian Telephone (03) 62337608

• The Public Trustee Telephone (03) 6233 7598

• Aids & Equipment Community Equipment Scheme Provides personal care, and mobility and continence aids and appliances for Tasmania.